Today we drove from Phoenix to Laguna Beach, CA to stay a night with my brother. We had an opportunity to stop in Corona to fit AC for his new hiking chair. Last year I applied for a grant from Challenged Athlete’s Association for a new hiking chair for Anthony and he was given $1800! It was perfect timing right after the surgery. Since we always borrow Daring Adventures chair, we are thrilled at the prospect of having our own. There are lots of nuances we need to support his post-surgery back now so this will be much easier than the make-shift project Chris had to tackle every time we got the chair back.
Next stop was my brothers in Laguna Beach. The deck on his home overlooks the ocean where we kicked back, relaxed and breathed in the gorgeous sunset. Just being out of our normal environment is very refreshing and I already have felt my shoulders drop several inches.
Today reminded me that my boys are amazing travelers. Amazing. Low maintenance, no complaining, smiling, happy, flexible and courteous. Let’s how they are on Day 5! traveling with DMD is definitely some extra work and planning. However, with a ton of patience and a confidence of knowing there's always help and a solution if you ask, we have found no reason yet to boldly go where everyone else gets to go.
Just feeling really blessed. We are off to a great start!
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